file_id:1943 | NYU Langone Medical Center | New York

One Tough Mudder

Cute as a Button
Seven years ago our niece Julianna Goldstein was born. Shortly thereafter she was discovered to have what is now classified as an intractable seizure disorder that has resulted in severe global developmental delays, making her nonverbal and nonambulatory. Throughout her life, her seizure disorder has been treated with various therapies and medicines, but there has been no breakthrough for Julianna.

Many people don't realize that epilepsy affects more people than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson's combined – yet receives fewer federal dollars per patient than each of these conditions. FACES is an organization dedicated to improving the lives of people with epilepsy, and their families, through research, education, and clinical and community support programs.

To help raise awareness and hopefully a little cash for FACES, I am going to participate in (and hopefully finish) the April 19 Tough Mudder in the Poconos. For those who don't know what a Tough Mudder is - it is a 10-12 mile obstacle course full of mud, cold water, electrified wires and other ridiculous obstacles - so effectively a race in which no sane person would willingly participate. But no one has ever used the word sane when describing me!

So, if the spirit moves you, please donate to FACES by clicking on the link - and you will help inspire me on my obstacle - and hopefully help those facing the obstacles presented by epilepsy.


Terri (aka T-Pain)
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